Support measures for persons affected by long COVID

ISE11/2022
Subject: health services, Coronavirus disease 2019, health services – hospitals

Tag Cloud
WHO's guidance and global overview of support measures for long COVID patients
Support measures for long COVID patients in Hong Kong
Experiences in England, the UK
Long COVID clinics
Paediatric hubs
Service demand
Experiences in the US
Statutory requirements on accommodation in workplace and school
Enabling access to assistive technology tools
Concluding remarks
Prepared by Denise CHEUNG
Research Office
Research and Information Division
Legislative Council Secretariat
5 August 2022

Endnotes:
  1. There is no internationally agreed definition of long COVID. The World Health Organization describes the symptoms as occurring "usually within three months from the onset of COVID-19" and lasting for "at least two months." In the US, the Centers for Disease Control and Prevention states that when an individual experiences new, returning, or continuing health problems for four weeks or more after the date of initial COVID-19 infection, they are experiencing post-COVID conditions. See World Health Organization (2021a) and Centers for Disease Control and Prevention (2022b).
  2. For example, a systemic review of 45 research studies finds that the median proportion of individuals who experienced persistent post COVID-19 symptom was 73%. Another meta-analysis covering 50 studies showed that the estimated global prevalence of long COVID was 43%. See JAMA Network (2021) and University of Minnesota (2022).
  3. See European Agency for Safety and Health at Work (2022).
  4. See Brookings Institution (2022) and Bank of England (2022).
  5. For example, see 文匯報(2022a) and 香港新聞網(2022).
  6. See World Health Organization (2021b, 2021c).
  7. Institutions that have published estimates on long COVID prevalence in Hong Kong include New Century Forum (see 文匯報(2022b)), the Chinese University of Hong Kong (see 香港01(2022)) and the Hong Kong Polytechnic University (see香港理工大學(2022)).
  8. It should be noted that the figure covered patients who were infected with COVID-19 before the 5th wave of epidemic that occurred in 2022. See 明報(2022b).
  9. See 星島日報(2022).
  10. See Scientific American (2022).
  11. See 東方日報(2022b).
  12. There is little information on long COVID on the Government's COVID-19 online portal, coronavirus.gov.hk.
  13. For example, the Sham Shui Po District Health Centre ("DHC") hosted online seminars, and the Central and Western DHC Express hosted face-to-face workshops on long COVID. Under the purview of the Health Bureau, DHCs provide a variety of primary healthcare services, including health promotion, disease prevention, chronic disease management and community rehabilitation. There are currently six DHCs and 11 DHC Expresses.
  14. See 香港經濟日報(2022) and Food and Health Bureau (2022).
  15. Launched in 2003, CMCTRs all operate on a tripartite collaboration model involving HA, a non-governmental organisation ("NGO") and a local university. NGOs are responsible for the running and day-to-day operation of the CMCTRs. See Hospital Authority (2021).
  16. See Health Bureau. (2022).
  17. See Legislative Council (2022).
  18. See The Chinese University of Hong Kong (2022a) and The Hong Kong Polytechnic University (2022).
  19. See GovHK (2022a).
  20. For example, see 東方日報(2022a) and 香港01周報(2022).
  21. As at 1 June 2022. See Office for National Statistics (2022c).
  22. While clinical assessment services require referrals and thus may not be directly accessible, NHS offers the "Your COVID Recovery" platform to support patients' self-management. The platform consists of two components: (i) a publicly open website containing information on recovering from COVID-19 and long COVID including physical, emotional and psychological wellbeing; and (ii) an interactive recovery platform, available upon referral by general practitioners or long COVID clinics, to enable patients to contact a healthcare professional for rehabilitation advice and/or join an online forum for peer-to-peer support. Meanwhile, long COVID patients can also access the UK government's one-stop online guidance on the range of support available to them. See NHS (2021a, 2022c).
  23. See UK Parliament (2022).
  24. An example is The Suffolk and North East Essex Long COVID Assessment Service. See NHS North East Essex CCG (undated).
  25. Latest statistics as at March 2022. See Office for National Statistics (2022b).
  26. See BHR University Hospitals NHS Trust (2021), Banbury Guardian (2021) and The News, Portsmouth (2021). Having said that, there have also been issues over variations in the services among the long COVID clinics. For example, some paediatric hubs were said to only provide treatment for fatigue but not other health problems. See UK Parliament (2022).
  27. See The Guardian (2022).
  28. Moreover, there are considerable variations among regions, with the longest waiting time in South East England (where 39% of those who received initial specialist assessment during the period from 9 May to 5 June 2022 had waited for at least 15 weeks).
  29. See NHS (2022a).
  30. The UK has in place the Health and Social Care Visa scheme to allow medical professionals to come to or stay in the UK to do an eligible job with NHS, an NHS supplier or in adult social care. See Gov.UK (2022).
  31. The data is based on periodic household surveys conducted by the Centers for Disease Control and Prevention. See Centers for Disease Control and Prevention (2022a).
  32. See The White House (2022b).
  33. Currently there are at least one long COVID clinic in each of the states in the US providing treatment and rehabilitation services, with its design and operation varied from state to state. More recently, the national health agency, Centers for Disease Control and Prevention, has released an interim guidance for healthcare providers treating patients with post-COVID conditions, which among others, advises that "based on current information, many post-COVID conditions can be managed by primary care providers, with the incorporation of patient-centered approaches to optimize the quality of life and function in affected patients". See Centers for Disease Control and Prevention (2021).
  34. The federal civil right laws covered include the American Disability Act (which applies to the government, schools, employers and anyone who offers goods or services to the public), Section 504 of the Rehabilitation Act (which applies to recipients of federal financial assistance), and Section 1557 of the Patient Protection and Affordable Care Act (which applies to health programmes and activities). See U.S. Department of Health and Human Services (2021).
  35. According to the American Disability Act, major life activities include functions such as caring for oneself, performing manual tasks, seeing, hearing, eating, sleeping, walking, standing, sitting, reaching, lifting, bending, speaking, breathing, learning, reading, concentrating, thinking, communicating, interacting with others, and working. Major life activities also include the operation of a major bodily function, such as functions of the immune system, normal cell growth, etc.
  36. Besides workplace and school, businesses that provide goods or services to the public are also required to provide reasonable adjustment to long COVID patients as the disability regulations apply to all places accessed and open to the public.
  37. If the employee does not cooperate in providing the requested reasonable medical information, the employer can lawfully deny the accommodation request. See U.S. Equal Employment Opportunity Commission (2022).
  38. Funded by the US Department of Labor's Office of Disability Employment Policy, the Job Accommodation Network provides free, expert, and confidential guidance on job accommodations and disability employment issues.
  39. See Job Accommodation Network (2021b).
  40. For further details on employers' obligations, see U.S. Equal Employment Opportunity Commission (2022).
  41. See Harvard Business Review (2021) and SHRM (2021).
  42. See Time (2022b).
  43. For example, see Fortune (2022) and Bloomberg Law (2021).
  44. See Power (undated).
  45. See Time (2022a).
  46. See United States Department of Education (2021).
  47. For further suggestions of accommodations for students suffering from long COVID, see the list provided by the Kennedy Krieger Institute (2021), a non-profit paediatric hospital which operates a pediatric post-COVID clinic and a nurse-education programme for schools.
  48. See Washington Post (2021).
  49. The Assistive Technology Act Technical Assistance and Training Center published an issue brief providing insights on how long COVID patients may benefit from AT programmes. See AT3 Center (2021).
  50. See Florida Alliance for Assistive Services and Technology (2021) and Disability Rights Florida (2020).
References

Essentials are compiled for Members and Committees of the Legislative Council. They are not legal or other professional advice and shall not be relied on as such. Essentials are subject to copyright owned by The Legislative Council Commission (The Commission). The Commission permits accurate reproduction of Essentials for non-commercial use in a manner not adversely affecting the Legislative Council. Please refer to the Disclaimer and Copyright Notice on the Legislative Council website at www.legco.gov.hk for details. The paper number of this issue of Essentials is ISE11/2022.